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Inside
This Issue
Chief
Judge Judith S. Kaye Commends CASA Programs
Recognizing Parents With Psychiatric Disabilities
Online Resources
Business Partners
Invisible Children’s Project
Regional Task Forces Addressing Parents With
Psychiatric Disabilities
Challenges and Opportunities for Parents With
Psychiatric Disabilities
Volunteer Spotlight
Chief
Judge Judith S. Kaye Commends CASA Programs
In
her annual State of the Judiciary Address delivered in Albany on
February 9th, Chief Judge Judith S. Kaye committed to forming a
work group to explore the expansion of the CASA program across New
York State. Commending the work of CASA volunteers, Judge Kaye stated,
"we appreciate all the help we can get, chief among them the
Court Appointed Special Advocates - CASA, a national program of
trained volunteers who spend time with a child and just about anyone
who has contact with that child, and then report their findings
to the Family Court Judge who must decide whether the child can
safely be returned home."
Judge
Kaye commented that "CASA is a wonderful example of how ordinary
citizens can contribute to the well-being of their communities by
brightening the future, one child at a time." She also noted
that, "just the other day, in a newspaper report, Monroe County
Family Court Judge Anthony Sciolino summed up how our Family Court
Judges feel about CASA: 'We couldn't do our jobs without people
like you.'"
Recognizing
that in 2003 there were more than 800,000 family case filings, showing
a steady increase over previous years, and while acknowledging the
good work CASA programs accomplish, she also noted the need for
expanded services. "Terrific as they are, CASA programs serve
barely one-third of New York's 62 counties," she said. As a
result, a group of current and former Family Court judges and administrators,
including Sheryl Dicker, Executive Director of Judge Kaye's Permanent
Judicial Commission on Justice for Children, has been convened to
study the CASA program and make recommendations about the program's
growth "so that no child waits a minute longer than absolutely
necessary before being placed in, or returned to, a safe and loving
home." CASANYS will work with the Permanent Judicial Commission
and the Office of Court Administration to support the work group's
efforts and help implement its recommendations.
Judge
Kaye's address highlighted a number of other initiatives improving
the lives of New York State's children, including other projects
the Permanent Judicial Commission on Justice for Children is working
on focusing on the health, education and developmental needs of
children. She also noted efforts such as Adoption Now, Parent Education
Advisory Boards, innovations in matrimonial litigation, the E-Petition
Project, the NYC "Blueprint for Change", and Integrated
Domestic Violence courts. Judge Kaye asserts that "nowhere
is the challenge of societal change greater for us today than with
respect to families."
For
the full text of the speech, visit http://www.courts.state.ny.us/ctapps/soj.htm.
Recognizing Parents with Psychiatric
Disabilities
By Darlene Ward, Executive Director, CASA: Advocates for Children
of New York State
In
the early 1990s, advocates for persons with mental illness had a
formidable task: convincing the state that the population it thought
it was serving had dramatically changed over the years. State and
county mental health services for adults were originally designed,
by and large, to assist single adult males, generally with diagnoses
of a "serious and persistent mental illness (SPMI)." What
had happened over the years, particularly after the deinstitutionalization
movement, was that increasingly the individuals requesting services
were parents, many of them single women with children under the
age of six. It was finally the numbers that got the attention of
policy makers: 24% of adults diagnosed as SPMI treated by the public
mental health system alone had children under age 18; of that group,
45% of females under age 35 had young children. 16% of children
in foster care had a parent with a psychiatric disability, as did
21% of children receiving prevention services.
Yet
few programs offered support and treatment services that provided
for both the needs of the parents and the children. At that time,
the state's psychiatric centers intake form did not even include
the question: "Do you have children?" Families with a
parent diagnosed with a psychiatric disability were ending up in
the social service system, the children being removed to foster
care. They were ending up in Family Court, with judges frustrated
by a lack of good community-based resources to ensure the safety
of the children and to provide support to parents. Parents were
distraught that they were separated from their children and then
expected to recover from symptoms of mental illness, often in programs
that did not even acknowledge their role as a parent or the intense
grief they were experiencing at the threatened loss of their family.
A
joint Office of Mental Health and Department of Social Services
Task Force was formed to address this issue, and hearings were held
around the state. An advocacy project was funded at the Mental Health
Association in New York State (MHANYS), with an Advisory Group drawing
together parents, service providers, governmental representatives,
advocates and legal services providers. After years of meetings,
trainings, hearings, letters and publications, the systems began
to change. Model programs were funded, and success stories began
to emerge.
The
project identified as a priority the number of parents with psychiatric
disabilities involved in the Family Court system. As CASA knows,
on a good day, being involved in a court proceeding can be daunting.
To a young, single mother who may have her own trauma history, a
diagnosis of depression, experience with domestic violence, and
no financial resources - by far the most common profile of the parent
seen by the project - a court appearance that held the threat of
losing her child was an insurmountable obstacle. Her love of her
child, desire to take good care of that child, and interest in her
own personal healing became buried under anxiety, confusion and
grief, often manifesting itself as anger toward some of the same
individuals attempting to help.
To
assist these families and facilitate family stability and reunification
where possible, a parent's guide to family court for parents with
psychiatric disabilities was written and disseminated statewide.
When a copy landed at Albany County Family Court, the MHANYS project
received a call ordering a box of them. The publication is still
available for download on MHANYS' website at www.mhanys.org.
Despite
efforts of many dedicated individuals, successful model programs,
and deep systemic change, many challenges remain. We still live
in a culture that is ignorant about and fearful of mental illness.
We still want to protect children and provide them with the most
nurturing and stable home possible, and a parent's psychiatric disability
can raise both realistic concerns in that area, as well as prejudice.
Reactive service plans can, and have, made a bad situation worse.
And not responding can, and has, put children at risk and led to
parental decompensation.
As
we move forward, it is important to remember that a parent with
a psychiatric disability is first and foremost a parent. If you
are a parent, you know that nothing in your life is unaffected by
that role. Whatever help and support we offer families impacted
by mental illness, we need to honor that priority. More research,
more respectful and supportive programs, and most of all, more awareness
of the issue will help us with that goal.
Online Resources
National Mental Health Association www.nmha.org
Mental Health Association in New York State (MHANYS) www.mhanys.org
Families Together in NYS, Inc. www.ftnys.org
Internet Mental Health www.mentalhealth.com
VESID (Office of Vocational and Educational Services for Individuals
with Disabilities) www.vesid.nysed.gov
Knowledge Exchange Network (KEN) www.mentalhealth.org
Salud mental - Acceso Hispano www.selfreliancefoundation.org/saludmental.htm
Family Village www.familyvillage.wisc.edu/index.html
CH.A.D.D.(Children and Adults With Attention Deficit Disorders)
www.chadd.org
Parenting Well www.parentingwell.org/index.html
Juvenile Justice Home Page www.abanet.org/crimjust/juvjus/home.html
New York State Council on Children and Families Homepage http://capital.net/com/council
Parents Helping Parents www.php.com
New York State Office of Mental Health www.omh.state.ny.us
Internet Mental Health www.mentalhealth.com
Business Partners
In each issue of The CASA Volunteer Salute, CASANYS spotlights members
of the business community who recognize the important work of our
volunteers.
Something
in the annual appeal letter from Genesee County CASA caught the
eye of Alfred (Butch) Coglitore of LeRoy Motors. He decided to not
only contribute financially, but use the visibility of his business
to publicize the work of CASA in Genesee County. He sold Christmas
trees in front of his dealership and donated $50 for every car sold
during the month of December. CASA received over $3,000!
A LeRoy Motors customer learned of CASA at the dealership and brought
the information she received to her church youth group. They not
only raised another $100, but awareness of the program as well.
LeRoy Motors is convinced they can raise even more money in 2004.
Thank
you to LeRoy Motors! We appreciate your support and generosity!
The Invisible Children's Project:
A Family-Centered Intervention for Parents with Mental Illness
Resource: The Mental Health Association in Orange County, Inc
In
1991, under the leadership of Lucinda Sloan Mallen, the Mental Health
Association in Orange County, Inc. embarked on a deliberate strategic
effort to raise awareness of the issue of parents with a diagnosis
of mental illness and their minor children. This passionate advocacy
has influenced policy makers at the local, state, and national levels,
resulting in systemic change and the development of the model program,
the Invisible Children's Project.
The
program's central focus is to empower parents and give them the
necessary support to create a safe and nurturing environment for
their children. Many of the parents seek assistance with prevention
of foster care as well as seeking custody of children who have been
lost to the foster care system. The primary objective of the Invisible
Children's Project is to support parents with a diagnosis of a mental
illness in their efforts to be the best parent they can be while
keeping the family unit together.
Many
families that work with the Invisible Children's Project are at
risk for having their children placed in foster care. This often
is a concern that supersedes all other issues in a parent's mind.
In order to prevent placement it is important to understand the
nature of risk children may be subjected to. A parental mental illness
is a risk factor that may lead to foster care placement for a child.
The role of the Invisible Children's Project is to provide the support
and links to community resources to help reduce risk and therefore
increase the chances for the parent and family's success.
Since
1993, the Invisible Children's Project has served over 500 men,
women, and children. One parent in the program states "therapy
and medication played a part in my recovery, but the Invisible Children's
Project is a miraculous gift from God, which is directly responsible
for giving me and my children our lives back."
To learn more about the Invisible Children's Project, visit www.mhaorangeny.com/icpweb.htm.
Regional Task Forces Addressing Parents
With Psychiatric Disabilities
Resource: www.mhanys.org/pwpd/pwpd_taskreg.htm
North
Central Region (includes the Counties of: Clinton, Franklin, Essex,
St. Lawrence, Jefferson, Lewis, Herkimer, and Hamilton). Contact
Bonnie Newell, (518) 891-0504.
South
Central Region (includes the Counties of: Oswego, Onieda, Cayuga,
Cortland, Broome, Delaware, Schoharie, Otsego, Chenango, Madison,
Onondaga, and Fulton/Montgomery)
Northern
Hudson Region (includes the Counties of: Warren, Washington, Saratoga,
Schenectady, Rensselaer, Albany, Greene, and Columbia). Contact
Jennifer Best, (518) 435-9931 ext. 264.
Southern
Hudson Region (includes the Counties of: Ulster, Dutchess, Sullivan,
Orange, Putnam, New York City, Nassau, and Suffolk). Contact Barbara
Callahan, (845) 454-8692.
North
Western Region (includes the Counties of: Wayne, Ontario, Livingston,
Monroe, Orleans, Genesee, Seneca and Niagara). Contact Renee Jacobs,
(585) 325-3145 ext. 33, rjacobs@mharochester.org.
South
Western Region (includes the Counties of: Erie, Wyoming, Chautauqua,
Cattaraugus, Allegany, Steuben, Schuyler, Tompkins, Yates, Chemung,
and Tioga). Contact Beth Jenkins, (607) 273-9250.
For
more information, contact Helena Davis at MHANYS at (518)434-0439.
Challenges and Opportunities for
Parents With Psychiatric Disabilities: How CASA Can Help
By Lisa Easterly-Klaas, C.S.W., Project Director for the NYS Office
of Mental Health, CASANYS Board Member, and Ph.D. candidate at the
SUNY Albany School of Social Welfare
Many
young and middle-aged adults with serious mental illness are bearing
children. Several studies show that American women with serious
mental illness bear children at rates similar to that of the general
population.
Researchers
have shown that motherhood is a valued and motivating life role
for women with serious mental illness. And, although there is agreement
that parenting is a major adult role and that mental health services
should provide opportunities and support for functioning in major
adult roles, mental health systems have been slow to deliver services
that support functioning in the parenting role. Most mental health
service systems do not collect information on the parenting status
of the service recipient. As a consequence, families and children
suffer from the lack of support and preventive family services.
This results in children of individuals with psychiatric disabilities
being removed from their home and placed in protective services
at a much higher rate than that of similar demographic populations.
Children of individuals with psychiatric disabilities are removed
from their families at rates up to 80%, according to some sources
(Blanch and Purcell, 1993; Blanch et al., 1994). In fact, many individuals
describe their serious mental illness as a litmus test during custody
disputes in family court. Once an individual is labeled as mentally
ill, their odds of retaining custody of their children are likely
to be reduced.
Several
studies cite mental health issues among the most complicating factors
in reunifying children with their biological families (National
Research council on Child Abuse and Neglect, 1993). Mental health
advocates fear that, under the Adoptions and Safe Families Act (ASFA),
the increasingly stringent time lines for reunification of children
with their biological parents, and the 18 month time frame to relinquish
parental rights is especially threatening to parents with serious
mental illness. Given the current service system gaps in their care
and family support, it may not be possible to attain psychiatric
and family stability within this time frame. These families face
additional challenges because child and family services are ill-equipped
to support the special needs of parents with serious mental illness,
including the need for parenting support.
CASA
volunteers can be especially helpful in supporting families in which
a parent is diagnosed with serious mental illness. CASA volunteers
can work with families and service providers to insure that the
parent is receiving support with both their mental health and parenting
needs. Many children of individuals with serious mental illness
are taken into custody when the parent seeks inpatient hospitalization,
because the parent doesn't have anyone to care for them. CASA volunteers
may assist these families in preparing a directive plan designating
someone to care for the children in case of such an emergency and,
thus, help prevent foster placement. Also, CASA volunteers can educate
judges and child welfare workers about individuals with serious
mental illness, specifically that these individuals often have a
great desire to be effective parents. Although it may take a little
longer for someone with a psychiatric disability to receive all
the services needed to learn the necessary skills, the desire to
be a parent can be a motivating factor for engaging these parents
in treatment and parenting classes so that they can parent effectively.
Volunteer Spotlight...Marjorie Mellor
Several years ago, Marjorie Mellor's children suggested that instead
of holiday gifts, they make a donation to a charity. That generous
family contribution to Onondaga County CASA turned into something
much more when Marjorie became a volunteer.
As
a retired elementary school art teacher in the Syracuse City Public
Schools, Marjorie finds being with the children the most enjoyable
part of her CASA role. Given that, it would seem that her first
and only assignment was a perfect fit: eight brothers and sisters
ranging in age from a newborn to a 16 year old. She visits with
each child at least once a month and works closely with the foster
parents and relatives who care for them. When you speak with her,
it is clear that she sees the unique needs of each child and that
she is very motivated to ensure that each finds a permanent and
loving home. For three of the children, this means being placed
with relatives; for two, long-term foster care; and for the others,
a process of reunification with their father.
Like
so many volunteers, Marjorie has found a way to blend her other
interests into her CASA work. As a longtime docent and Board Member
of the Everson Museum of Art, Marjorie forged a partnership between
the museum and the Department of Social Services (DSS). Through
her advocacy, many families are now enjoying visitations at the
museum, where there is an interactive children's gallery. She is
intent on expanding DSS' use of this space, which she feels is comfortable
for families because it is “not a scene where there is hardship;
it is safe and there are beautiful things to look at.” This
partnership is free to both the museum and to DSS, so she is hopeful
it will endure. In addition to providing a beautiful and family-friendly
place for children in foster care to gather with their relatives,
this partnership also “raises the profile of CASA so that
people in the community know about it and understand it better.”
Thank
you to Marjorie and all CASA volunteers who put their creative talents
to such good use on behalf of children and families.
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